KEIRA: BEST LIFE POSSIBLE
Like all new parents, Katie and Jim relished every moment with their new baby girl, Keira. They saw her as a perfect angel and relished every milestone she reached. Around 15 months old they started to notice a few differences in Keira. She wasn’t crawling and she didn’t seem interested in playing with other kids, but they attributed it to the fact that all children develop differently, and they figured she would move straight from scooting to walking, as Katie did as a baby. However, some of these differences raised a red flag for their pediatrician who started Keira on physical and occupational therapy. The therapy seemed to be working, but the family was still left without answers. After months of waiting, Keira was finally given a diagnosis of Rhett Syndrome, a rare motor function disorder.
After learning about all of the therapy and care Keira was going to need, Katie and Jim quickly realized they wouldn’t be able to do it all on their own, even though they tried. “We are very independent,” Katie said. “but we knew we had to ask for help if we wanted to give her the best life possible.” The family was introduced to Broadscope through one of their case workers, and they felt so blessed to be given this extra support. “I couldn’t believe how comfortable we felt with Broadscope right away,” Katie said. “Having those funds, and the ability to hire someone who already had experience with Keira’s needs was very important to us.” Katie and Jim use Respite hours every week and it allows them to keep regular work schedules, spend quality time with each other, or enjoy outings with their younger daughter. “I have recommended Broadscope to so many other families. They understand that every family has different needs and they see each family as their own.”